Tickboxes and tokenism?

Shaping Our Lives has today published Tickboxes and Tokenism: Service user involvement report 2022 – exploring deaf and Disabled people’s experiences of being involved in planning and delivering services such as health and social care.

Service user engagement (also referred to as public participation) is increasingly seen as important for shaping and delivering public services, but those running involvement opportunities don’t always have the experience or knowledge to meaningfully and accessibly involve Disabled people.

The report explores some of the barriers people face when it comes to sharing their lived experience and contains recommendations for organisations to make sure the lived experience of deaf and Disabled people is heard and valued.

There are five key findings from the study:

  1. 92% of respondents said they would be interested in finding out about (more) involvement opportunities. 63% said they currently find it difficult to find involvement opportunities.
  2. Only 39% currently have their access requirements recorded. Of those that didn’t, many thought this would be useful so that organisers could find the right people, plan ahead and make necessary adjustments.
  3. We asked people what was important for them to be able to take part in involvement activities. 65% said that they needed their access and support requirements organised in advance. This rose to 100% amongst respondents to the British Sign Language (BSL) survey.
  4. Besides meeting their access requirements and other practicalities, people said they needed to be listened to and for their input to have an impact. They want a meaningful experience and do not want their time wasted.
  5. Over half (56%) of respondents have difficulty getting their access and support needs met (rising to 89% for the BSL survey).

Peter Beresford OBE, Co-Chair of Shaping Our Lives, Visiting Professor at the University of East Anglia, said: “There is a lot of talk about the importance of involving disabled people and social care service users. There is more and more recognition of making sure that involvement is inclusive; that is to say, it should include everyone regardless of age, ethnicity, gender, sexual orientation, impairment and so on.”

“But we see that too many people aren’t able to get involved with the access and support they need. Many more want to have a voice and be involved. The report offers recommendations and ways forward.” To download a copy of the report please visit our website: Tickboxes and Tokenism? Service User Involvement Report 2022 – Shaping Our Lives

Launching the My Involvement Profile

As a result of the survey findings, Shaping Our Lives is launching a new tool to help people who want to share their lived experiences.

The My Involvement Profile is a resource where people can record their skills, lived experience knowledge and experience of engagement, involvement, co-production and research. Crucially it will also support people to explain their access requirements in advance.

We asked in the survey if people had their access and support requirements, as well as their knowledge and skills, recorded so that they can be easily shared with organisers of involvement activities. The majority of people (61%) said that they didn’t. When asked if it would be helpful to have such a record, many people thought that it would be a great idea and would help organisers find the right people, plan ahead and make necessary adjustments.

Shaping Our Lives can support individuals to complete their My Involvement Profile. Find out more about the My Involvement Profile on our website: Support to Take Part in Involvement – Shaping Our Lives

About Shaping Our Lives

Shaping Our Lives is a user-led, non-profit organisation, specialising in the inclusive involvement of Disabled people and people from other marginalised communities. We have decades of experience in research and inclusive involvement. We draw on the knowledge and expertise of our national network of service users and user-led organisations. Sign up for our ebulletins: http://eepurl.com/gmQUu9

About the study

The survey was promoted through our network and beyond, using the website, e-bulletins, social media, our members and our partners. It was interpreted into British Sign Language and promoted to Deaf organisations. We ran one workshop with people with learning disabilities and have been supported by People First England to disseminate the survey to their members.

We received 126 responses, with 9 from the British Sign Language community, and 12 people attended the workshop.

Integrated Care System moves to July 2022

In a letter to all health and care systems, NHS England and NHS Improvement have advised that, in order to allow sufficient time for the remaining parliamentary stages of the Health and Care Bill, a revised target date of 1 July 2022 has been agreed for ICS arrangements to take effect and Integrated Care Boards (ICBs) to be legally and operationally established.

This replaces the previous target date of 1 April 2022 and means that current statutory arrangements will now remain in place until 1 July. Preparations are continuing in Northamptonshire to be ready for full Integrated Care System status, formalising the joint working arrangements already established for health and care in our county and simplifying partnership working and decision making.

Subject to the passage of the Health and Care Bill through Parliament, NHS Northamptonshire Clinical Commissioning Group (CCG) will be disestablished at the end of June 2022 and two new statutory bodies will come into effect: an Integrated Care Board (ICB) to oversee local NHS functions and working closely with an Integrated Care Partnership of wider health and care organisations.

The current CCG Chief Executive Toby Sanders has been confirmed as the Designate Chief Executive of the new Northamptonshire ICB, with NHCP Chair Naomi Eisenstadt installed as the ICB Chair Designate. Three designated Non-Executive Directors and a Chief Finance Officer have also been appointed to the ICB, which is our aim to begin operating as a shadow arrangement from 1 April.

Key highlights from the governments levelling up document

There is much debate about what the Government mean by Levelling up but are there clues in the White Paper?

Here are some of the key highlights:

  • A review of neighbourhood governance, including looking at the role and functions of parish councils and how to make them quicker and easier to establish.
  • Explore how the existing Community Infrastructure Levy (CIL) can be used to support neighbourhood and community activity where parish councils do not exist and continue the neighbourhood portion of CIL as it introduces a new Infrastructure Levy.
  • No top-down restructuring of local government.
  • A new Strategy for Community Spaces and Relationships.
  • Enhance the offer in the Community Ownership Fund, learning lessons from the first bidding round to maximise the impact of the fund.
  • Consider how the existing Community Asset Transfer and Asset of Community Value Schemes can be enhanced.
  • Councils and communities will create new local design codes to shape streets as residents wish, widen the accessibility of neighbourhood planning, encouraging more accessible hybrid models for planning committees in England and look to pilot greater empowerment of communities to shape regeneration and development plans. • The ability to have a meaningful say on individual planning applications will be retained and improved through new digital technologies.
  • Work to build local government capacity and capability through ongoing sector support and funding a programme of improvement covering a range of priorities which is reviewed periodically.
  • Extend centrally designed training, advice and guidance, and market and supplier intelligence to the sector.
  • Introduce an obligation for the UK Government to publish an annual report on delivery against the levelling up mission
  • A new approach to place through Levelling Up Directors, providing a key point of contact for local areas, acting as a bridge between local leaders and central government.
  • Setting up local panels, drawn from a wide range of stakeholders, to serve as a sounding board on levelling up delivery and implementation, working closely with new Levelling Up Directors.
  • Engage with local government and key stakeholders on the simplification of the local growth funding landscape with respect to the publication of further plans later this year. • Explore piloting local votes for funding, putting choices in the hands of local communities to let them decide what matters most
  • Launch the UK Shared Prosperity Fund providing funding of £2.6 billion by March 2025, with all areas of the UK receiving an allocation from the Fund via a funding formula rather than a competition.
  • Establish a body to focus on local data, transparency, and outcomes.

Some of the things we like

The idea that communities can have a say or a voice in their streets and localities is a must. If we truly care about grass roots revival then people must have the right to shape their communities, input their ideas and be listened to. A new debate about the interconnection between public space and people is welcomed, as is an obligation on Government to report progress against transparent outcomes. More funding is always a bonus, although we question the ability of some Town or Parish Councils to be bigger players than they currently are. Levelling Up Directors seems like a good idea in principle, but these people should not be Government minded but community spirited (and there is a difference).

Some of the things we don’t like

Anything that has centralised, or quango written all over it such as centralised training (why?) or a new body to check out outcomes (why?).

I guess there will be more debate over the coming months and VIN is keen to compile a White Paper Working Group – and will keep you all informed on progress. If anyone is interested in joining the debate, contact russell.rolph@voluntaryimpact.org.uk

Cherwell Theatre – Time for Heroes

The Time for Heroes coming of age comedy drama explores the highs and lows of teenage life, seen through the eyes of young musicians. With original songs and a dynamic ‘gig theatre’ staging, the play is a love letter to a time and place; dramatising the tension between friendship and artistic integrity and the joys of creating music with the world at your feet.

It’s post-post Britpop and a spate of alternative bands are playing fast, sweaty gigs in dark, grimy pubs. Indie rock is back in the mainstream and everyone wants to be the next big thing. Alex has a band. They may not have a name, or any gigs yet, but they’ve got a Myspace page, some battered guitars and a practice room above a carpet shop.

“You have to give everything to this. Your whole self. Nothing less than bleeding heart, none sparing honesty. Because what’s the point in anything less?”

The project has been funded by Arts Council England, Garfield Weston Foundation, Northamptonshire Community Foundation, The Garrick Charitable Trust and Northampton Borough Council. It is produced in partnership by Cherwell Theatre Company and Royal & Derngate Theatres Northampton. Performances are scheduled at The Picturedrome, Northampton from 11-28 August 2022.

Overall dates are:
  • Outreach workshops with community organisations and schools: March/April 2022
  • Weekly sessions at Royal & Derngate after the Easter holidays
  • Rehearsals with professional company: 11 July – 5 August 2022 (Royal & Derngate)
  • Tech and dress rehearsals: 8,9,10 August 2022 (Picturedrome)
  • Run- 20 x performances between 11-28 August 2022 (weekdays and weekends)
We’ll aim to start outreach in March/April. We we visit different settings to provide a music and drama workshops, in which young people aged 14+ will integrate movement, text and live music with our movement and musical director.

We’ll then start weekly workshops to continue this work on the play at Royal & Derngate after Easter. 24 sessions in total, we’ll start weekly, building up to twice weekly in June and more intensive in July. There will be an acting and movement ensemble and a musicians ensemble.

Weekly rehearsals will be Tuesdays 7-9 at Royal & Derngate

There are opportunities for local bands to perform a few songs before the August performances as well (sort of like an ‘opening act’ each night!) they can work with our musical and movement director on their sets.

We can also provide opportunities to work with the lighting designer during tech/the run too if you have any young people interested in lighting

Hosting a Poverty Truth Commission in Northamptonshire

North Northamptonshire will be funding Voluntary Impact Northamptonshire to host a Poverty Truth Commission specifically for the North in April of 2022.

Whilst the emphasis may be slightly different from that of the West (where a Poverty Truth Commission has been running since June 2021) we are hopeful that real life experience from individuals and communities will help to inform better Anti-Poverty Strategies, particularly in communities where levelling up is required.

If you live in the North of the County and wish to tell your story, please contact russell.rolph@voluntaryimpact.org.uk in the first instance.

If you are a community organisation that works with beneficiaries on the edge of financial vulnerability please talk to us about how we can get their stories heard and raise the profile of some very important and critical issues.

Poverty Truth Survey – Latest

As hosts of the Poverty Truth Commission in West Northamptonshire, Voluntary Impact Northamptonshire (VIN) has been conducting an ongoing Poverty Truth Survey on the issues affecting individuals within our communities. The latest results can be viewed here

The survey will continue, and we encourage people to take 5 minutes to complete the questions. The information provided will help to inform the Anti-Poverty Strategy currently taking place in the West.

While the sample is still small, the responses are worrying, particularly the number of people who are genuinely concerned about how they will cope or are living on the edge of financial vulnerability.

If individuals want to tell their story in more detail, then please let us know at info@voluntaryimpact.org.uk. We will ensure the story gets the profile it deserves.

If community organisations know of people who might want to tell their story of vulnerability, then please contact us and we will take the process further with the identified individual.

We all know that poverty and mental health will be the two largest issues to face our communities in the near future.

Help VIN to get these stories heard.

Friday bulletin

In this weeks bulletin, safeguarding podcasts, we need more stories for our Poverty Truth Commission, become a trustee at Voluntary Impact Northamptonshire, Enhanced Membership Training for Safeguarding Adults and the latest news.

Queen Baton Relay batonbearers nominations

This is a huge milestone for the Queen’s Baton Relay, as following its journey across the Commonwealth, the Baton will return to England, where it will spend 25 days traveling the length and breadth of the country and we need 2,022 Batonbearers to take on this once-in-a-lifetime opportunity of carrying the Baton!

Get involved

Birmingham Organising Committee for the 2022 Commonwealth Games encourages you all to submit a Batonbearer nomination via their website, for an inspiring individual in your life or networks. To submit a nomination simply explain in 100 words or less how your nominee meets the Batonbearer criteria below. Please note arts, culture, and charity are represented in the criteria list, so it’s a great chance to highlight our wonderful sector.

The criteria for a Batonbearer is someone who meets one or more of the following:

  • Always willing to take on a challenge and has a unique and inspiring story
  • Has made a meaningful contribution to sport, education, the arts, culture, or charity
  • Is a figure of inspiration that positively challenges others to achieve their best, and
  • Has taken on a challenge or cause and made a positive impact within their community.

Join the Midlands Learning Together programme

Midlands Learning Together programme free to join, as part of Thriving Communities which aims to support community health and wellbeing groups sustain their work for Social Prescribing

Thriving Communities is a new national support programme for voluntary, community, faith and social enterprise groups, supporting communities impacted by COVID19 in England, working alongside social prescribing link workers.

The learning together programme will help you understand the developments of Social Prescribing and how your work is part of Social Prescribing. You will have the chance to create partnerships with fellow community groups and other professionals across the health and local authority system to sustain your work in the long term.

Click here to learn more about the Midlands Learning Together programme as part of Thriving Communities National Academy for Social Prescribing.

Friday Bulletin

In this week’s bulletin, Annual Snapshot for the Year 2020/2021, become a trustee, VIN Registered Office service: Expressions of Interest invited and much more.